ANNOUNCEMENT
We hope you found these pages helpful. No further updates are planned for this website and it will be retired in January 2026. It will remain available until then.
This reference site is to help people who have Eosinophilic Fasciitis (Shulman’s syndrome), and their doctors and carers. On this page are links to medical sites and academic papers. There are EF studies and case reports on the Studies page which you can download. A faster way to get answers to your EF questions is to use the Ask AI page.
The Drugs page lists the drugs being prescribed for EF and some evidence in support of each drug.
The Statistics page has been compiled from the online postings of around 400 EF patients. It also gives an estimate of the Prevalence of EF in the USA.
The Treatment page shows what has been working for EF patients who post online.
Medical sites
Medscape (treatment, other pages require login)
MSD Manual (brief overview)
Apfed (sample patient story)
Academic papers
National Library of Medicine
Bielefeld University Library
Oxford Journals
UpToDate (requires login)
[updated: 2025-11-10]