**************************************************************************************************** * These statistics are compiled from postings by EF patients in online forums. Rundate: 2020-12-06 * **************************************************************************************************** NUMBER OF EF PATIENTS SELECTED FOR THESE STATISTICS: 386 **************************************************************************************************** * (11) Count EF patients reporting these SYMPTOMS (many are under-reported) * **************************************************************************************************** NOTE: The Female% Male% columns show the percentage of that gender having that symptom or concern Patients Female Male Female% Male% Affected Part or Symptom or Concern -------- ------ ---- ------- ----- -------------------------------------------------- 386 259 127 67% 33% 269 190 79 73% 62% Legs 241 165 76 64% 60% Arms 203 129 74 50% 58% Hands 193 136 57 53% 45% Edema 188 136 52 53% 41% Induration 167 126 41 49% 32% Pain (fibrosis/muscle) 154 116 38 45% 30% TightSkin 147 104 43 40% 34% Feet 144 93 51 36% 40% CarpalTunnel 139 101 38 39% 30% Ankles 135 91 44 35% 35% Joints 133 99 34 38% 27% Fatigue 115 82 33 32% 26% Calves 103 84 19 32% 15% OrangeSkin (peau d'orange) 98 73 25 28% 20% WeightLoss 93 70 23 27% 18% Neuropathy/Paresthesia 91 61 30 24% 24% Wrists 84 61 23 24% 18% Knees 80 55 25 21% 20% Pain (joints) 77 64 13 25% 10% Itchiness 76 58 18 22% 14% Trunk 75 61 14 24% 11% Morphea 75 54 21 21% 17% GrooveSign 75 52 23 20% 18% Cramps 74 63 11 24% 9% Abdomen 73 54 19 21% 15% Thighs 66 59 7 23% 6% Skin has lumpy appearance (cobblestone) 66 43 23 17% 18% UnableToWork 63 41 22 16% 17% StrengthLoss 62 42 20 16% 16% Back 55 50 5 19% 4% SwollenBelly (EF=45,Pred=10) 53 42 11 16% 9% Chest 50 40 10 15% 8% DarkenedSkin 49 42 7 16% 6% RedSkin 48 36 12 14% 9% Shoulders 47 37 10 14% 8% Shins 45 36 9 14% 7% Neck 41 31 10 12% 8% Elbows 37 31 6 12% 5% Respiration 36 24 12 9% 9% Throat 31 28 3 11% 2% HairLoss 31 24 7 9% 6% Fever 28 26 2 10% 2% ThickenedSkin 28 22 6 8% 5% Hips 28 20 8 8% 6% Face 27 23 4 9% 3% Pain (skin) 27 19 8 7% 6% DrySkin 23 18 5 7% 4% Soles 22 16 6 6% 5% Jaw 16 15 1 6% 1% WhiteSkin 16 14 2 5% 2% Pain (unspecified) 15 13 2 5% 2% BurningSkin 15 11 4 4% 3% PeelingSkin 14 9 5 3% 4% Blisters 11 5 6 2% 5% SkinSores 7 5 2 2% 2% Ulcers 7 5 2 2% 2% Wheelchair 57 rows selected.